PCOS Success & Symptoms
Women Sharing their experiences with PolyCystic Ovarian Syndrome (PCOS)
I was diagnosed with PCOS 5 years ago from an Ob/Gyn who knew nothing about PCOS, who in turn sent me to a fertility specialist to get help. I was not trying to conceive at the time, until you find out you might not be able to at all. When I got there she explained the many things that many doctors could not. The irregular periods, weight gain, acne, hair growth. She told me to loose weight, and my periods should come back to a normal 28 day routine. I was given the aktins diet to follow and sent home. I went through the worst case of depression. I didn't want to be around babies or anyone who had one. It seemed no matter what I did or where I went there seemed to be a flock of pregnant mothers, and babies.
We tried for two years before deciding to get married first. The wedding took alot of pressure off of me trying to conceive. While at work one day I got on a topic with a co-worker we found we both had PCOS and she told me about a doctor she was going to. I decided I had nothing to loose and I went she explained to me, that it would not be easy to get pregnant and it might be stressful. I was in it for the long haul. I read the book "Living with PCOS" which gave me great confidence. I went through all the horrible tests. I was given my first dose of Clomid 50mg in Sept, I found out I was pregnant in Oct.
My HCG numbers were low for a normal pregnancy and I was told I could have an eptopic pregnancy due to the PCOS. I went for my first us and found I was not having an eptopic pregnancy but a TWIN pregnancy. My boys were born 8 weeks early weighing in at 5 lbs each. They are now 2 1/2 years old, and doing great. We are now trying for our 3 baby. I hear the second pregnancy is easier then the first. I can report though I have lost 60 lbs in 9 months preparing for this pregnancy, just by changing diet and doing exercise.
Your website is an inspiration for many people, and it has sometimes been a godsend for someone who just needs to have someone who understands..
We tried for over a year, I was on clomid (cd5-9) at 50, 100, & 150...NOTHING! Then my endocrine doctor put me on Glucophage (this is a drug for diabetics, which I am not).
Some how, this drug is shown to help women with polycystic ovarian syndrome to ovulate!
I was never actually diagnosed with this syndrome (done by U/S or LAP), but just according to my symptoms, the doctor tried it. I was to take 500mg of Glucophage XR (sustained release)once a day until pregnant. I took it for two days and ovulated! (just used OTC ovulation tests). We got pg, but it turned out to be tubal YIKES! Thankfully (sort of) they were able to induce a miscarriage so that I had no rupture or further complications. Once we were allowed to try again, we did clomid and glucophage, but it didn't seem to be working. Then I saw my endometriosis again. He doubled the dose, and 2 days and BAM! (this was a good 2 weeks or so after the clomid, so I don't really think the clomid mattered, it was all about the Gluc!). I was pg, had my baby- 10 wks early!! (as if all the trying wasn't enough!). My son is about to be 14 months old and he is perfectly healthy! We are now trying again. I was at my OB today. She said, well if you're taking the Gluc, you don't need to take the clomid! (cool, cuz Gluc doesn't have hot flashes!) You just have to be careful about your sugar counts -be sure you get this from a doctor who checks your levels and gives you a list of all the signs of low blood sugar (hypoglycemia), as this could be a very SERIOUS health risk.
If everything checks out, this is actually a very 'easy' drug to take-at least, it was for me.
Best of luck to everyone-I hope I helped!
First of all, I wanted to say thanks! I'm so grateful for stumbling across your website this evening!
About a month ago I lost hope, which seems to happen every few months, as most women trying to conceive already know.
Anyhow, my doctor basically told me there was nothing else she could do for me. My thoughts were pretty much, she hasn't done much of anything to begin with. Just to give you a quick sum up of the past five years... I've been diagnosed with PCOS. For the first year my doctor didn't do squat! It was never really explained to me what on Earth it was, let alone what, if anything, could be done for it. I was just billed for the office call and sent on my way. Well, that lead to me transferring to another doctor! The new doctor agreed with the PCOS diagnosis, but at least now I knew what it was. But, still, no one was doing anything about it. Finally, by the third doctor, I was given that glimmer of hope.She seemed to know what PCOS was and knew something could be done about it. To begin, I needed to have a period. Which meant I was put on Provera.The progesterone hormone that tells your body to shed that lining. Well, after the longest period of my life and the ungodly mood swings that nearly ended both my life and my marriage, I was just glad that step was over!! After that I was put on glucophage, (1500mg). Along with that, it was decided that I take birth control pills to try to regulate my cycles. This really confused my husband, and many others. Having regular periods was a dream! But, of course, it's called birth control for a reason - ya can't conceive if you're on the pill! Unfortunately, I wasted many months listening to my doctor and stayed on the pill. (Apparently she missed the part when I said I REALLY, REALLY wanted to have a child. Don't ask me why I listened to her and stayed on the pill for as long as I did.) Anyhow, she is the one that recently said there was nothing else she could do for me. Fortunately, I'm the type to find the good in everything and everybody. As you have read, all she really did for me was help to trigger the worst period of my life. This is the part where I praise God for my loving husband! It proved to me, my husband and everyone around us, that if the man could survive that one, he could survive anything! Well, I'm now on doctor #4... who is actually only a primary care physician, but she is the greatest! After having doctor #3 tell me there was nothing else she could do, the first thing I did was called and made an appointment with my primary care doctor. I saw her today! She works with an OB/GYN there in that same office. She has given me another glimmer of hope. She went right back to talk to the OB/GYN while I was there in the office today and he is willing and eager to meet with me. I am now up to 2000mg of glucophage a day and I have an appointment to meet with the new OB/GYN next week to discuss CLOMID! I'm a little nervous about side effects. I don't like taking medicine. But I really want a family and I'm ready to do whatever it takes! I just hope and pray I survive the mood swings. :o) Hopefully, it will work! Thanks again for the website, and thanks for letting me share my story. I look forward to reading the updates and all the supportive information!
In the mean time, I'll be waiting for my miracle.
Take care and may God bless you!
Hi! My name is Carla and I am 26 years old.
My husband and I started trying for a baby in February.
After 3 months of normal cycles, my period never came.
After many negative pregnancy tests, I started to think something might be wrong. I went to the gyn and he ran some blood work. The tests came back positive for PCOS. I was given a shot of progesterone to bring on my period. It came, but the next month never came either. I had to get another shot and was feeling pretty frustrated. I started on Clomid 50 mg cd 2-6 in October. For the next several months, I had periods that were normal, but no pregnancy success. In December I started 100 mg Clomid cd 2-6 and Glucophage 1500mg every day. In January, we found out that my husband had a low Semen Analysis. So, we had fertility issues on male and female sides. In February, I had a HSG test to see if my fallopian tubes were open. This procedure was very painful for me and showed no blockage. Five days later, I had a positive opk and my husband and I tried again for our miracle. I just knew that this cycle was a waste and we were to start IUI the following month. Ten days later, I found out that I was pregnant! There are several things that I credit to our success. The main reason is the power of prayer and faith. A friend from work suggested that my husband and I hold hands and pray every night for a baby. Even though we had been praying individually, I thought it couldn't hurt. One month after we started this prayer, we were pregnant. I also believe that the HSG cleared my fallopian tubes. Clomid and Glucophage helped to regulate my period and bring on ovulation. I am now 16 weeks pregnant and so thankful for our miracle. My advice for anyone reading this is never give up and believe in the power of prayer. I would read the success stories on this site and I knew that one day, someone would be reading mine.
EDD November 23rd
I was just diagnosed with PCOS and I also am TTC with #3.
I just finished my first round of clomid 50mg and am waiting to do the progesterone test on the 14th of April. My question to you is the use of glucophage while TTC.
From what I read, glucophage isn't suppose to be used while you are pregnant. Would this have any effects on a fetus?
If this is something that is safe then how do I go about discussing this with my physician about wanting to get on the glucophage in the event this month's clomid is not successful? ..I went to see a reproductive endocrinologist about my PCOS, insulin resistance, and TTC. She told me that in alot of cases when all 3 are involved, just being on the glucophage can straighten out the increased insulin levels just enough to ovulate and even conceive. She also said that with the glucophage, you can be on it the first trimester and it might even help the pregnancy but in the US it isn't yet approved to be on 2nd and 3rd trimester. (HOWEVER...In Europe, they do) So I am just now on my 2nd month of glucophage 1500mg and my progesterone level was 0.2 this month. I was going to wait to see if the glucophage would fix things but I'm too anxious so I will ask to be started on the clomid with this next month.
Hope this info helps.
I have been reading this board - fantastic information!!!
I have been ttc since my first successful bio child was born in in November. (I have 2 adopted sons whom I absolutely love
but adoption is very very expensive). I knew my estrogen and progesterone levels have been virtually non existent since giving birth over 3 years ago. I have been accepted to a research study at the woman's hospital in my area. I have been randomized to receive clomid 100 mg along with specially timed estrogen and progesterone supplements. I am very excited and am praying that it works. I will post again to let you guys know if it has worked. They have been doing the study for only 3 months so far and are having much success with it. I want to note though that for the last 4 months I have been eliminating sugar and any processed foods from my diet and at my gyn appointment 2 days ago my hormone levels were great!! I think this corresponds with the glucophage theory -
just a more natural way to do it.
Remember that if we eat the way God put the resources here our health is bound to improve!! I probably eat anywhere from 40 to 50 grams of fat a day and I have lost 10 pounds!!
I started on 50 mg of Clomid in July. I had went with/o a cycle for two years. I'm on a 5-9 days cycle also of Clomid. I've had the hot flashes, the cramping, some weight gain. And now this month I'm having the excessive bleeding. Changing every hour. Which I agree with somebody else that's worse than hot flashes. I have Adenomyosis, Endometriosis, and PCOS.
Me and my dh have been TTC for 3 yrs now. I start my third month of clomid on Thursday Sept 11th. What a day to start huh?! Please keep me in your prayers. I'll keep you posted. And by the way when I first started taking Clomid I had the moderate ovarian pain also, associated to ovulation. I take 1000mg of Metformin/Glucaphage & the 50 mg clomid. Maybe it'll work the dr. said hopefully when I go back at the end of October maybe I'll be pg.
Love ya'll. Keep trying!!!!!
Don't give up.
Hi! I thought you might be able to use my experience on your site. =) I have pcos, and don't normally o on my own.
My doctor started me on clomid, 50mg, cds 3 - 7.
I had one good follicle that time, and o'd on cd15.
I had no side effects - NONE!
I even got pregnant! I was so happy. But then I lost the baby. I had to wait a month and then my doctor said he wanted to up my dose to raise my progesterone. So this time we went with 200mg. A big jump, I was a little scared at first. But it was ok. My only side effect was headaches, and even then they weren't that bad. I could handle these. I had two follicles this time, and had the hcg shot. I o'd again on cd15, but did not get pregnant. Now I am once again on 200mg. I just took my first four pills today. I think that probably, once again, I will have the headaches, but that's probably about it. Hopefully, this will be our lucky month, and we wont have to ttc for another year or so!!!
TTC #2, 3rd round of clomid, 2nd on 200 mg
My name is Bridgette, I am 28 years old and I have (PCOS)
and have suffered for years with chronic bleeding and pain,
and the whole nine yards, but most of all I have never been able to become pregnant, when I was 18 I got pregnant but it ended in miscarriage, for 10 years now my husband and I have been trying to have a baby while I'm in and out of the hospital due to blood loss, back In May I found a good Dr and he done a Laparoscopy and found that my Tubes were completely blocked, I went on a diet and Lost now 51 pounds, and I have done a lot of praying I believe in prayer and the power of God, last week I went and had a HSG, and my tubes were open wide, and since I have done a ovulation test everyday
they were all negative until today it was positive, I am taking glucophage 500 mg once a day for two weeks now, this is the first positive sign I have had in 10 years, and I am so very thankful, when I lost the 51 pounds it helped the pcos along with the gluophage. my bleeding stoped and the pain is not as bad, and I am ovulating!!
This web site has been so educating to me and encourging.
I hope I will have a positive preg test soon,
I really can't believe that I'm finally able to post this story.
I have been coming here as long as I've been ttcing and this site has been nothing but a wonderful source of information and support. I only hope that my story will help to give others hope.
I started ttcing in Sept. My OB/GYN sent me for an HSG and it was found that my left tube was blocked. She didn't do anything about it at the time, since, according to her I still had 1 healthy tube and that's all it takes.She then put me on Clomid, unmonitored, for 3 cycles.I did not ovulate at all. I was then referred to a fertility specialist, who is also an gynecologist, not an RE. I had my first appointment with him in October. He put me on metformin and told me to call him when AF arrived. Before that could happen, I lost my job which meant I had no benefits and could not afford to see him until I was working again. I found a great job in November and made an appointment to get things started again in February. In the meantime, I was getting AF more regularly and could tell that for the first time ever, I was ovulating. I had also lost about 25 lbs, thanks to low carbing combined with the metformin. At my appointment in February, my dr. ordered that we have a few tests done. DH did all his bloodwork and everything came back fine. I had to have a procedure to clear my tube, which was successful. I then had a sonohystogram (blow up your uterus with water and then do an ultrasound), which showed a number of medium sized polyps in my uterus. In order for me to hold a pregnancy, I had to get those removed. So in May, I had the surgery to remove the polyps. We were finally ready to go!!! In July, I started clomid again. I finally ovulated, but didn't get pregnant. We tried 3 cycles. On the third cycle, I didn't even ovulate, so my dr. decided to move us on to injectibles with 2 IUIs. My first cycle was trial and error and produced 2 follicles, but didn't conceive. My second cycle I only produced one follicle and again, didn't conceive. I took a break over the Christmas holidays, since the office was closed and picked up again in January. The third time was a charm. I produced 9 follicles and ovulated 5 of them. Everything seemed to be perfect. I went in 2 weeks later for my b/t, which I was sure would be negative, since that's all I'd ever known. I got the call from the dr's office a few hours later that it was positive!!! I was in pure shock (and still am).
My beta @ 14dpo was 70.
At 16dpo it was 143.
My first u/s is on March 3rd.
I did not chart my temps or do anything ttc related during the 2ww. I did start yoga and actually felt very calm during most of the 2ww. By posting my story here, I hope I can help at least one person get through the miserable times that the ttc can bring. I look back on my journey and cannot believe that I had the inner strength and drive to get to where I am. All of the disappointment and jealousy. The negative tests and the false pg symptoms.Sometimes, our mind plays evil tricks on us. Up until this point, my life had been very easy. I come from a comfortable family, and was fortunate enough to always get everything that I needed.This was the first time that I did not have control over my destiny and I made it through. So, if I can, you can too.
Good luck to all, and remember,
if I can do it, so can you!!!!
I can give you hope (long)...
I posted on this site about 2 months ago. I said that after stopping BCP after 10 yrs of taking them, my cycles were still long, irregular, and anovulatory for the last 1 1/2 yrs since. My periods had to be induced with Provera each time. My family doctor (not an ob/gyn or re), decided not to induce my period with Provera after it was anovulatory, once again, although the Metformin was increased to 1500mg and I was on my first round of Clomid 50mg. He said just to start round 2 using the combo. The truth is that I have never ovulated in my life. This was a tough struggle for us. I say "was" because with this breakthrough technology my doctor suggested, I was able to ovulate for the first time this month AND get my BFP!!!!!!!!!!!!!!!
I was so excited that I ovulated that pregnancy didn't enter my mind until my temps stayed in the 98's for 15 days. I decided to give it a shot and did 5 different HPT's and 2 CBE Digital tests. They were all positive and the digitals said PREGNANT on both of them!!! I'm going for blood work today to confirm what I already know.
The symptoms I had were bloating, tender breasts, pulling/stretching uterus, and increased appetite. I still have the pulling/stretching uterus and VERY tender breasts. So, you might like to ask your doctor about what my doctor did if you have long, irregular, anovulatory cycles. If I got pregnant the first time I ovulated in my life, I know you can too. I'm wishing everyone a lot of baby dust.
Thank you for reading my story.
Posted By: Lea
My husband and I had tried for 8 years to get pregnant.
I went to fertility doctors, and tried Clomid, temp charting, and everything else in the book. About year 7 we decided it just wasn't going to happen for us, so we started the adoption process of an 11 year old. In December the adoption was final.
In March, I had a cyst on my ovary and went to the hospital, the ER doctor sent me to a GYN for follow up. At the GYN, to treat the POCS, he was going to put me on Birth Control pills.I told him briefly my husband and my history, and our desire to have a child.He said that he had a treatment for POCS with a 90% pregnancy rate.I was skeptical at best, but I agreed to try the Metformin that he was recommending. I began taking the medicine in the middle of March. I began my cycle on the 11th of April. I skipped my cycle in May, which was not unusual for me, and then I skipped June as well. I began to get concerned. I had some of the pregnancy symptoms, but I had been trying for 8 years, so I did not believe it. I took a hpt on June 10th 2003, and it had two bold lines.I couldn't believe my eyes, I was PREGNANT!
I didn't believe it until I heard his little heart beat around week 10. I had one of the smoothest pregnancies you can have, and on January 8th at 11:13pm I had Landon Parker. He was the most beautiful thing I had ever seen. I always tell people God blessed us twice, once with the 11 year old, and twice with Landon. I feel like a complete woman now, and would like to spread the word about Metformin. I have done extensive studying on it since it worked for me, and found it really does have a fantastic success rate for women that have POCS.
Good Luck and God Bless.
I thought I would always be the one reading the success stories and here I am posting mine after two years of trying. Eight years of having PCOS and the struggle of TTC. DH and I tried naturally for a long time and then I tried herbs and I didn't O but had a 29 day cycle. The first in forever. I then went on Metformin 500mg and 50mg Clomid and O'd but no BFP.
Next month another 50mg of Clomid but 850mg of Metformin. No O and I was irritated. DH and I decided to take a break after the next cycle and have his SA done. During the last month he had an infection(Epidipiditis) possibly causing his soldiers to be dysfunctional.
The month before the break I took 100 mg Clomid and 850 mg Met + Lecithin, Alfalfa,prenatal,baby asprin and during implatation I drank ORGANIC PINAPPLE JUICE. My temps stayed down and I didnt think I O'd and the FF gave me lines. My temp only went from 97.9 to 98.0, 98.1! Not a big jump at all. When I found out I o'd I told my DH that I dont care if we get PG this month just the fact that I o'd is a plus.
CD10-Took a test a 5am immedietly saw a negative line, threw it in the garbage. Didnt wait the 3 minutes to see the final result. 8:30 am a voice promted me to look again and BAM a faint + line. I was shocked and overwhelmed, crying in disbelief! IT WAS MY DH BIRTHDAY!
I posted on the our message board about my BFP and someone mentioned an evap line. RAIN ON MY PARADE indeed. Answer PG support line called it a false positive since I read the results after 10 min. I cried all day after believing I was finally PG.
CD11-5am- Two pink lines and darker. I AM PG!!! ( I must tell you I learned about evap lines real quick and how rare they are. Not to mention both lines have to be a different color. I had two pink lines.
Okay okay, symptoms:
15DPO- Dizzy spells. Even at work.
Hope this helps. This truly was a blessing for my dearest heavenly father. We are blessed in many ways.
All my love,
Due: July 25th
PCOS PolyCystic Ovarian Syndrome